When my son was first diagnosed with Menkes Disease, I placed complete trust in every word spoken by the medical professionals. I accepted their conclusions without question. When they told me that there was no cure, no effective medication available on earth, and that intervention was already too late, I received their statements as final.
In a single day, hope seemed to disappear…
Overnight, the future I had envisioned for my child felt as though it had been erased. I became overwhelmed by despair, to the extent that I found myself contemplating ending my own life after my child’s passing. Such thought did not arise from weakness, but from the unbearable weight of grief and fear that had overtaken me.
In my desperation, I searched relentlessly. I examined every website, every medical article, and every possible source of information, hoping to find even the smallest indication of hope. Unfortunately, nothing was helpful.
However, when I cried out to God out of desperation, God heard me and blessed me with an instantaneous miracle from Heaven.
As parents, when we confronted with a diagnosis of this magnitude, even many years of faithful Christian practice can feel distant. In moments of profound crisis, fear often overshadow faith. The God we have worshiped each Sunday can seem silent, while the voices of medical authority grow louder and more decisive.
Parents of children with special needs, how can I help you to understand that our children do not have to live under the label “child with special needs” for a lifetime?
As parents, we can have faith and trust that God has the power to change the situation through prayer. I’m speaking of having steadfast, unwavering faith in God and praying persistently until we receive the miracle we seek!
I remember that in 2022, shortly after we made the decision to proceed with the operation, God blessed me with the powerful sermon by Pastor Steven Furtick…
When I heard Pastor Steven state in his sermon “because we believe in the wrong what if…” it became clear to me that I had placed too much faith in the wrong “what if”- I had focused more on the possibility of my son might have a very high chance of dying on the operating table rather than placing my trust in God Almighty surely can and will deliver us from this darkness.
As I switched my focus on Jesus, everything changed. Faith and peace replaced my fear. During those nine months in the hospital, I diligently sought the Lord with my heart, holding firmly to the promise in the Scripture that God rewards those who earnestly seek Him. I developed a deep desire to understand God’s will and to stand on His promises.
I began watching films about Jesus Christ, my Savoir, and devoted myself to listening to sermons by Pastor John Osteen and Pastor Steven Furtick. Instead of dwelling on the potential complications of my son’s upcoming surgery, I immersed myself in messages of hope and faith, listening day and night.
The sermons of these two respected Pastors became a profound source of strength. With each message, my faith was renewed and fortified- growing from the size of a mustard seed into something strong and deeply rooted, like a giant pine tree.
I fixed my heart firmly on Jesus, because holding steadfast to the belief that He would not allow my son to die, regardless of the medical prognosis. By faith, I continually declared with boldness:” My son shall not die, but live, and declare the works of the Lord. With long life, Lord You shall satisfy my son.”
By God’s grace, my son survived. Today, he is healthy- stronger and even more capable than before. I give all praise and glory to Jesus Christ for His faithfulness and mercy.
Millions of children with special needs are described as having brain damage, including my own son, who at one time suffered greatly from what I believe to be a severe spiritual affliction.
You may respond by saying, “My child has already been diagnosed with brain damage. What am I expected to believe now, Mary? Are you being unrealistic? Do you not understand that this condition is considered irreversible in medical industry?”
Well, let us watch this sermon by Pastor John Osteen! Please pay attention to the testimony of the boy who was born without a brain… and see what the Lord had done for him!
It truly is amazing! The Bible tells us that God is able to do exceedingly, abundantly above all that we can ask or imagine. Pastor John’s family is a testament to that truth. My son is a miracle, and the child mentioned in the sermon, who was born without a brain, is a miracle. Each of these lives stands as evidence of God’s faithfulness, goodness, and power.
Have these miracles come easily? Certainly not. We have had to persevere through profound challenges and tight through life’s difficulties with unwavering faith. Yet through it all, we have witnessed God’ hand at work. Before all the days of persistent prayers and worship, we believed that God is able to deliver our children and didn’t give up.
As parent of a child with special needs who has been diagnosed with a rare genetic disorder, our initial reaction was one of overwhelming fear and despair. We asked ourselves, “If this condition is rooted in genetics, what can medical science possibly do?” While there are established treatments for illnesses such as cancer and heart disease, we struggled to understand what options might exist for a disorder or syndrome caused by genetic abnormalities.
We felt as though there were no medicines available, no effective treatments, and perhaps no hope. The grief was profound, especially when doctors informed us that our baby’s prognosis was terminal. In that moment, we were overcome with sorrow and uncertainty about the future.
To all broken-hearted parents who may be feeling desperate and hopeless, I understand the depth of your pain. However, I urge you not to lose heart.
There is hope in Jesus Christ, our Almighty God. He is able to bring healing to every kind of genetic condition, for He is the Creator of humanity, and genes themselves are part of His creation. Where human ability reaches its limit, God’s power begins.
I still remember meeting a mother several years ago whose baby boy had been diagnosed with the same condition as my son- Menkes Disease. She was a Buddhist, and when I shared with her how Jesus had healed my son, her first reaction was, “Please don’t talk about religion with me. Are you asking me to go to church?”.
As I continued to speak more about the power and goodness of our God, she replied,” I also wish that a miracle could happen for my son, Ethan. However, I do not want to be deeply disappointed if the miracle does not occur.”