It’s the worst nightmare to receive a diagnosis of Menkes Disease as a parent. We were told by genetic doctors that there is no cure or treatment on earth. They don’t know what would happen and when the day Jadon shall die … He told me there are 2 ways Jadon might die from, number one is that someday all of a sudden his brain would stop founction anymore and he would die. Secondly, he might die of lungs condition which means someday Jadon suddenly cannot breath anymore. Doctors everyday came to talk to us and told us all the bad news…
I had suffering from depression and had decided I’ll commit suicide if someday Jadon passes away. Because I really don’t think I can live without my baby. I was prescribed and given strong dosage of sleeping pills, and I already had hidden the whole bottle somewhere in our home that nobody knows. Until one day, Holy Spirit came down from Heaven and touched Jadon and everything has changed…
The adorable little boy you see in the photos below is my son Jadon. On the left side is what he looked like when he was 5+ months’ old, was diagnosed with Menkes Disease. On the right hand side is what he looked like about 10 months’ old AFTER the miracle happened.
There is a BIG difference when God laid HIS healing hands on a sick child like Jadon! Menkes Disease has another name as Kinky Hair Disease. However, as you can see clearly that when God breathed life into his dead genes, things CAN NOT STAY THE SAME! Who says there is no cure or treatment avaible on earth? Doctors? Medical professionals? They are only humans and they are limited!
I’m here to share with all of you all with a brokenheart facing a dead stentence diagnosis of your precious little one that miracles are REAL and God is REAL and He is closer than you think!
It all began on a sunny day around 4ish pm as I was standing next to the huge windows of KKH hospital ward’s corridor, holding my son in my arms and feeling so hopless and helpless just by thinking about what the doctors said to me…
Jadon and I we were alone in that area, l was looking at the cars outside running on the streets and sunlight was shining upon Jadon’s forehead. I suddenly started to talk to God and mumbling as my heart and soul was “pouring”.
Here is what I said to Lord Jesus …
“God if you are real, please give me a sign so that I know you are here. I’m so helpless Lord. Jesus, if you are willing, you can heal my Jadon. The doctors said my son has Menkes Disease and he cannot live for long. I cannot live without Jadon. Please help me with my unbelief! I repent all my sins (I gave Jesus a whole list of bad things I did in my life and confessed before Him). Jesus I know only you can heal my baby, give me a sign God! Lord, you breath life into my Jadon’s genes. Copper is all he needs! Lord breath life into his ability to absorb and release copper in his body, and bring ceruloplasmin level back to normal. I believe that by your strips my Jadon is healed. I believe I receive, in Jesus’ name, Amen!
Do you know what happened 10 minutes later after I talked to God and prayed?
under the sunlight, I saw my son's hair changing color instantaneously!!
YES! Jadon's hair started to change from white and grey into brown color in front of my own eyes!
Daddies and mummies, are you hoping for miracles for your deteriorating child but have doubts about if miracles are real? Please have a close look at my Jadon’s hair in the vedio below! You can see that the tipical symptom – kinky (white or grey color) hair of Menkes Disease, doesn’t manifest on my son anymore!
If this vedio cannot be played, please refresh the page and try again ^^
WHAT IS MENKES DISEASE?
Here I’m sharing with you about how Jadon’s hair changed into black color. The picture below is how his hair looked like when he was diagnosed at 5+ months’ old. He looked physically so weak and pale with kinky and twisted light pigmented hair.
After Lord Jesus touched him and breathed life into my son’s dead genes, all of his hair started to grow day by day … As you can see from the vedio below, the hair was growing out from the root of Jadon’s scalp! Dark brown color, not grey and white anymore!
Slowly but SURELY, God had restored Jadon’s copper level！Look! Jadon’s hair was growing!
Jadon was pale and physically so weak when he was first diagnosed, but ONLY WITHIN A MONTH’S TIME… Not only his hair statred to grow, but also the color of his skin had became rosy! Look at his chubby cheeks on the photos below! God is GOOD, all the glory to Jesus!!
I remember when Jadon was about 2 years old, we brought him for follow-up at skin doctor’s clinic. The female doctor was amazed to see Jadon’s hair so beautil, and said to us “Do you mind I let my supervisor knows, ask him to come here and have a look at Jadon’s hair? They happen to have a seminar about Menkes Disease next door right now…” We looked at each other and said ” Yes, sure!”
There was a group of senior doctors and young doctors came in from the door, and examined my son’s hair with a small telescope. I could tell that they were all surprised! One of the senior doctor asked us “Mummy and daddy, do you mind we cut a few of Jadon’s hair and do another test? Oh please don’t worry, this time will not charge you anything, it’s only for our studies’ purpose.” We agreed, and a few weeks later my husband got a call from a doctor and told us ” Well, we found something quite interesting. Most of the hair we took from the clinic that day just don’t show Menkes Disease anymore.”
I was not surprised because I knew Jadon was healed.
I remember years ago when my son was just diagnosed, I did searching all over on Google platform and hoping to find miracle healing testmonies about fatal rare genetic disease so that I could be encouraged. However, I didn't find a thing back then ...
Now after all the amazing miracles that God has blessed us with, I am here to share with all of you who are trying to look for articles online about miracle healing on fatal rare genetic diease. I really hope our story can bring more faith and hope into your broken hearts, knowing that miracles are real! More importantly, God is closer than you think and HE is reachable. If Jesus can heal and save my son's life, so can your children! !
