Be careful of what we say, because we are creating the very things we are talking about!

When my son was first diagnosed, fear overwhelmed my heart, and hope seemed to disappear. The voices of the world spoke loudly into our lives – voice of limitation, finality, and despair. We were told that my son would not live long, that even the most accomplished experts had nothing to offer. Human wisdom declared this situation finished before it had even begun.

I listened to those voices, I allowed them to shape my thoughts, my expectations, and my faith. I began to believe that nothing could be done. I remember telling my husband that perhaps we should follow the genetic doctors’ recommendation to pursue another child through medical intervention, one untouched by Menkes disease. In my heart, I had already surrendered. Darkness filled my mind, and despair weighed heavily on my soul. I was broken, exhausted, and deeply wounded by what I had been told was inevitable.